Here we go again. Three for three. Jaden, our middle child, started having some low blood sugars in the morning. A few of them have left him on the floor. With a more recent one, he passed out on me.
Now, I guess a doctor , or anyone who has been observant enough, would ask the question, Why now?? He is four years old. Why is this just now coming on? The girls started their spells at age one.
I guess my answer would be, different people react different ways to low blood sugar. Jaden doesn't complain about anything. He has had several ear aches that were a surprise at a well doctor visits.
When we found out what Anna had, Jaden was two years old, and I was pregnant with Ava. I begged doctors to test Jaden. They saw no need in it. So I thought we'd just wait it out to see. After all, to our knowledge he wasn't showing any signs (which at the time , we thought , was just vomiting)
When Ava started showing her symptoms I knew there was a good chance this was something they were inheriting....I mean you can't tell me that two out of my three just randomly have this ...right???
Well that is what the doctors were telling me after Ava was diagnosed. Still they were refusing to test Jaden. It only took once for that child to pass out on me before I started fighting for him.
His last "well visit" at the doctors showed that he is anemic, and he has protein in his urine. It also showed his hemoglobin was low. This told me that he was having more low blood sugar spells than I was aware of. So I started to monitor his sugar in the mornings and found that his sugar for the most part would be in the mid 50's to 60's.
Despite what you may believe by looking at this picture, he is not a happy kid most of the time. He is very irritable every morning, and his energy level is very low. When I told the doctor all of this she said, "my guess is that he just doesn't feel good"
My heart broke. I had spent so much time running the girls from doctor to doctor, getting blood work after blood work. From this procedure to the next.....I totally neglected seeing all of his signs that he had and now he may just have the same thing as the girls.
So I discussed all of this with the specialist and it turns out that she still isn't willing to test him. Well, I decided right then and there that it was Jadens turn. It was time for me to fight his fight. I didn't much care what she wasn't willing to do. I needed to find someone who was.
So through a series of doctor appointments and much discussion and many nights of prayer we have had all three kids referred to Cincinnati Children's Hospital for a second opinion. It is there that they will decided how and what to test Jaden for. They will then hopefully give me some more information on what the girls are dealing with.
There are just not a lot of doctors around that can help us with this. I dont' know if this is where we are suppose to be. I don't know what their future holds. I don't know what this means for them, or for their future family's......But what I do know is that they deserve an answer to all of these questions and as their mom I intend to get that for them.
So here we go, on what seems to be a never ending journey, but my God is standing at the end of it and I know if we keep our eyes on Him....we will see the light at the end of the tunnel soon enough.
Your prayers are greatly appriciated for our journey.
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