Well, today was Ava's big doctor appointment, and we still have several labs out and some that did not get done due to us having to help Ava come out of it. Several labs have come back though, and our intuition was right. Ava and Anna's labs were almost identical. I am not sure about numbers matching but Ava has low carnitine, and also several amino acids that are low as well, indicating a mitochondrial disorder. Now the results that she has back are going to be taken for another doctor to look at to decide what the next step is.
I am thinking it is just a matter of time before I curl up in a corner and cry. I'm not sure that would solve anything though. But sometimes it just feels good.
I have given this to God. I see this as a mess and He is seeing the bigger picture so I have to sit back and just let Him have it.
I look into their eyes and although I feel like I am carrying this on my shoulders...... I also know this is something they are living with. True they don't know everything I do about their condition and they don't know the risks involved with certain things but it is still something they have to live with. It is something they deal with. It is something that is affecting them personally........and just look at those smiles would ya, so if they can smile so can I :)
Sometimes the journey we are called to walk seems too long, and sometimes the mountains we are called to climb seems so wrong.............. but we have no choice but to keep walking...........
No comments:
Post a Comment